Adherence in multiple sclerosis (ADAMS)

Classification, relevance, and research needs. A meeting report

Christoph Heesen, Jared Bruce, Peter Feys, Jaume Sastre-Garriga, Alessandra Solari, Lina Eliasson, Vicki Matthews, Bettina Hausmann, Amy Perrin Ross, Miho Asano, Kaisa Imonen-Charalambous, Sascha Köpke, Wendy Clyne, Paul Bissell

Research output: Contribution to journalReview article

13 Citations (Scopus)

Abstract

Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.

Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.

Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.

Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.

Original languageEnglish
Pages (from-to)1795-1798
Number of pages4
JournalMultiple Sclerosis Journal
Volume20
Issue number13
Early online date22 Apr 2014
DOIs
Publication statusPublished - 1 Nov 2014
Externally publishedYes

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Focus Groups
Multiple Sclerosis
Patient Advocacy
Patient Preference
Research
Fatigue
Research Personnel
Delivery of Health Care
Health
Pharmaceutical Preparations
Therapeutics

Cite this

Heesen, Christoph ; Bruce, Jared ; Feys, Peter ; Sastre-Garriga, Jaume ; Solari, Alessandra ; Eliasson, Lina ; Matthews, Vicki ; Hausmann, Bettina ; Ross, Amy Perrin ; Asano, Miho ; Imonen-Charalambous, Kaisa ; Köpke, Sascha ; Clyne, Wendy ; Bissell, Paul. / Adherence in multiple sclerosis (ADAMS) : Classification, relevance, and research needs. A meeting report. In: Multiple Sclerosis Journal. 2014 ; Vol. 20, No. 13. pp. 1795-1798.
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abstract = "Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.",
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Heesen, C, Bruce, J, Feys, P, Sastre-Garriga, J, Solari, A, Eliasson, L, Matthews, V, Hausmann, B, Ross, AP, Asano, M, Imonen-Charalambous, K, Köpke, S, Clyne, W & Bissell, P 2014, 'Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report', Multiple Sclerosis Journal, vol. 20, no. 13, pp. 1795-1798. https://doi.org/10.1177/1352458514531348

Adherence in multiple sclerosis (ADAMS) : Classification, relevance, and research needs. A meeting report. / Heesen, Christoph; Bruce, Jared; Feys, Peter; Sastre-Garriga, Jaume; Solari, Alessandra; Eliasson, Lina; Matthews, Vicki; Hausmann, Bettina; Ross, Amy Perrin; Asano, Miho; Imonen-Charalambous, Kaisa; Köpke, Sascha; Clyne, Wendy; Bissell, Paul.

In: Multiple Sclerosis Journal, Vol. 20, No. 13, 01.11.2014, p. 1795-1798.

Research output: Contribution to journalReview article

TY - JOUR

T1 - Adherence in multiple sclerosis (ADAMS)

T2 - Classification, relevance, and research needs. A meeting report

AU - Heesen, Christoph

AU - Bruce, Jared

AU - Feys, Peter

AU - Sastre-Garriga, Jaume

AU - Solari, Alessandra

AU - Eliasson, Lina

AU - Matthews, Vicki

AU - Hausmann, Bettina

AU - Ross, Amy Perrin

AU - Asano, Miho

AU - Imonen-Charalambous, Kaisa

AU - Köpke, Sascha

AU - Clyne, Wendy

AU - Bissell, Paul

PY - 2014/11/1

Y1 - 2014/11/1

N2 - Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.

AB - Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.

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KW - Disease-modifying therapies

KW - Multiple sclerosis

KW - Rehabilitation

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U2 - 10.1177/1352458514531348

DO - 10.1177/1352458514531348

M3 - Review article

VL - 20

SP - 1795

EP - 1798

JO - Multiple Sclerosis

JF - Multiple Sclerosis

SN - 1352-4585

IS - 13

ER -