Bio-Health Information: a Preliminary Review of On-line Cystic Fibrosis Resources

Xia Jing, Stephen Kay, Nicholas R. Hardiker

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

The aims of this study are to determine, and to better understand, elements that are common across a range of bio-health information resources; and to characterize those resources in terms of search and display functionality. Our ultimate goal is to better define the role of bio-health information in clinical practice and in biological research. This paper reports our first step, which is to compare different web-based resources that describe cystic fibrosis. The resources came from PubMed, Nucleotide, EMBL-EBI, DDBJ, OMIM, MeSH, ICD-10, and the Cystic Fibrosis Mutation Database. We found obvious differences in terms of scope and purpose. However, while there were obvious similarities between related resources in terms of content, we also found differences among these resources in terms of display form, specificity of qualifiers, file format and the potential for computer processing. While our work is in its early stages, this study has clarified the nature of bio-health information resources and has allowed us to begin to characterize these resources in terms of their suitability in clinical practice and in biological research.

Original languageEnglish
Title of host publicationConnecting Medical Informatics and Bio-Informatics
Subtitle of host publicationProceedings of MIE 2005
EditorsR. Engelbrecht, A Geissbuhler, C Lovis, G Mihalas
PublisherIOS Press
Pages21-26
Number of pages6
Volume116
ISBN (Electronic)9781607501350
ISBN (Print)9781586035495
Publication statusPublished - Aug 2005
Externally publishedYes
Event19th International Congress of the European Federation for Medical Informatics - Geneva, Switzerland
Duration: 28 Aug 20051 Sep 2005
Conference number: 19

Publication series

NameStudies in Health Technology and Informatics
PublisherIOS Press
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference19th International Congress of the European Federation for Medical Informatics
Abbreviated titleMIE 2005
CountrySwitzerland
CityGeneva
Period28/08/051/09/05

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Jing, X., Kay, S., & Hardiker, N. R. (2005). Bio-Health Information: a Preliminary Review of On-line Cystic Fibrosis Resources. In R. Engelbrecht, A. Geissbuhler, C. Lovis, & G. Mihalas (Eds.), Connecting Medical Informatics and Bio-Informatics : Proceedings of MIE 2005 (Vol. 116, pp. 21-26). (Studies in Health Technology and Informatics). IOS Press.