Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China

Xue Yang, Victoria Byrne, Marcus Y. L. Chiu

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Background
By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued.

Methods
Data were collected through the qualitative methods of interviews and observations among a purposive sample of 15 parents of children with intellectual disabilities in central China.

Results
The central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system.

Conclusion
A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.
LanguageEnglish
Pages46-57
Number of pages12
JournalJournal of Applied Research in Intellectual Disabilities
Volume29
Issue number1
Early online date5 Mar 2015
DOIs
Publication statusPublished - 3 Dec 2015

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Disabled Children
caregiving
Intellectual Disability
China
parents
Parents
disability
experience
Quality of Life
Interviews
family research
responsibility
public support
grounded theory
qualitative method
quality of life
recipient
methodology
interview
community

Cite this

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title = "Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China",
abstract = "BackgroundBy utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued.MethodsData were collected through the qualitative methods of interviews and observations among a purposive sample of 15 parents of children with intellectual disabilities in central China.ResultsThe central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system.ConclusionA recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.",
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Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China. / Yang, Xue; Byrne, Victoria; Chiu, Marcus Y. L.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 29, No. 1, 03.12.2015, p. 46-57.

Research output: Contribution to journalArticle

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AU - Chiu, Marcus Y. L.

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