Caring for a dying spouse at the end of life

'It's one of the things you volunteer for when you get married': A qualitative study of the oldest carers' experiences

Mary Turner, Claire King, Christine Milligan, Carol Thomas, Sarah G. Brearley, David Seamark, Xu Wang, Susan Blake, Sheila Payne

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

Background: Older people aged 80 and over are increasingly providing End-Of-Life care to spouses at home and often do so for long periods of time, while also trying to manage their own illnesses and disabilities. Little of the research on older spousal carers has focussed on the oldest carers; hence, the needs of this particular population are not fully known. Objective: To explore the experiences of the 'Oldest carers' in caring for a dying spouse at home. Methods: Secondary analysis was undertaken on a subset of data from a larger qualitative interview study; this dataset comprised 17 interviews from participants aged 80 or over. Framework analysis methods were used, with items derived from the thematic analysis of the main study. Results: The oldest carers in this subset demonstrated high levels of resilience and the ability to adapt to their caring role. Caring until death was accepted as an integral part of the commitment made to their partner as part of the 'wedding contract'. Carers felt they benefitted from the support provided by family, friends and care services; however, their own care needs were not always recognised by health and social care services. Conclusions: These findings underscore the complexity of the oldest carers' experiences and challenges in times of illness and end of life. Healthcare professionals should be alerted to the myriad ways caregiving is enacted in serious illness and seek opportunities for developing supportive interventions specifically for older carers.
Original languageEnglish
Pages (from-to)421-426
Number of pages6
JournalAge and Ageing
Volume45
Issue number3
DOIs
Publication statusPublished - 1 May 2016
Externally publishedYes

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Spouses
Caregivers
Volunteers
Interviews
Delivery of Health Care
Aptitude
Terminal Care
Contracts
Social Work
Research
Population

Cite this

Turner, Mary ; King, Claire ; Milligan, Christine ; Thomas, Carol ; Brearley, Sarah G. ; Seamark, David ; Wang, Xu ; Blake, Susan ; Payne, Sheila. / Caring for a dying spouse at the end of life : 'It's one of the things you volunteer for when you get married': A qualitative study of the oldest carers' experiences. In: Age and Ageing. 2016 ; Vol. 45, No. 3. pp. 421-426.
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abstract = "Background: Older people aged 80 and over are increasingly providing End-Of-Life care to spouses at home and often do so for long periods of time, while also trying to manage their own illnesses and disabilities. Little of the research on older spousal carers has focussed on the oldest carers; hence, the needs of this particular population are not fully known. Objective: To explore the experiences of the 'Oldest carers' in caring for a dying spouse at home. Methods: Secondary analysis was undertaken on a subset of data from a larger qualitative interview study; this dataset comprised 17 interviews from participants aged 80 or over. Framework analysis methods were used, with items derived from the thematic analysis of the main study. Results: The oldest carers in this subset demonstrated high levels of resilience and the ability to adapt to their caring role. Caring until death was accepted as an integral part of the commitment made to their partner as part of the 'wedding contract'. Carers felt they benefitted from the support provided by family, friends and care services; however, their own care needs were not always recognised by health and social care services. Conclusions: These findings underscore the complexity of the oldest carers' experiences and challenges in times of illness and end of life. Healthcare professionals should be alerted to the myriad ways caregiving is enacted in serious illness and seek opportunities for developing supportive interventions specifically for older carers.",
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Caring for a dying spouse at the end of life : 'It's one of the things you volunteer for when you get married': A qualitative study of the oldest carers' experiences. / Turner, Mary; King, Claire; Milligan, Christine; Thomas, Carol; Brearley, Sarah G.; Seamark, David; Wang, Xu; Blake, Susan; Payne, Sheila.

In: Age and Ageing, Vol. 45, No. 3, 01.05.2016, p. 421-426.

Research output: Contribution to journalArticle

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