Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer: The views of patients and informal caregivers

Jackie Ellis, Richard Wagland, Carol Tishelman, Mari Lloyd Williams, Chris D. Bailey, Jemma Haines, Ann Caress, Paul Lorigan, Jaclyn A. Smith, Richard Booton, Fiona Blackhall, Alexander Molassiotis

Research output: Contribution to journalArticle

25 Citations (Scopus)

Abstract

Context: Few studies consider patient's and caregiver's preferences when developing nonpharmacological interventions. This is important to develop acceptable and accessible nonpharmacological interventions for patients with cancer. Objectives: The objective of this study was to identify the views of patients with lung cancer and their informal caregivers on the desirable components of a novel nonpharmacological intervention for the management of the symptom cluster of cough, breathlessness, and fatigue, and their needs and preferences regarding uptake and delivery of the intervention. Methods: This study was qualitative in orientation, using semistructured interviews and framework analysis to elicit the views of 37 patients with lung cancer and 23 caregivers regarding the issues that were perceived to be important regarding the development and delivery of a nonpharmacological intervention. Results: A number of key issues were identified that carried important implications for patient participation and adherence to the intervention, including the perceived relevance of potential techniques; appreciable benefits in the short term; convenience; variation in patient preferences; timing of the intervention; venue; caregiver involvement; the provider of the intervention, and contact with other patients. Conclusion: The data from this study have provided insight into the key issues that are likely to influence the development, uptake, and delivery of a nonpharmacological intervention to help manage the respiratory symptom cluster of cough, breathlessness, and fatigue. It is crucial that these findings are considered when developing and modeling a nonpharmacological symptom management intervention.

LanguageEnglish
Pages831-842
Number of pages12
JournalJournal of Pain and Symptom Management
Volume44
Issue number6
Early online date5 Jun 2012
DOIs
Publication statusPublished - 1 Dec 2012
Externally publishedYes

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Caregivers
Lung Neoplasms
Patient Preference
Cough
Dyspnea
Fatigue
Patient Participation
Patient Compliance
Interviews
Neoplasms

Cite this

Ellis, Jackie ; Wagland, Richard ; Tishelman, Carol ; Williams, Mari Lloyd ; Bailey, Chris D. ; Haines, Jemma ; Caress, Ann ; Lorigan, Paul ; Smith, Jaclyn A. ; Booton, Richard ; Blackhall, Fiona ; Molassiotis, Alexander. / Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer : The views of patients and informal caregivers. In: Journal of Pain and Symptom Management. 2012 ; Vol. 44, No. 6. pp. 831-842.
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Ellis, J, Wagland, R, Tishelman, C, Williams, ML, Bailey, CD, Haines, J, Caress, A, Lorigan, P, Smith, JA, Booton, R, Blackhall, F & Molassiotis, A 2012, 'Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer: The views of patients and informal caregivers', Journal of Pain and Symptom Management, vol. 44, no. 6, pp. 831-842. https://doi.org/10.1016/j.jpainsymman.2011.12.274

Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer : The views of patients and informal caregivers. / Ellis, Jackie; Wagland, Richard; Tishelman, Carol; Williams, Mari Lloyd; Bailey, Chris D.; Haines, Jemma; Caress, Ann; Lorigan, Paul; Smith, Jaclyn A.; Booton, Richard; Blackhall, Fiona; Molassiotis, Alexander.

In: Journal of Pain and Symptom Management, Vol. 44, No. 6, 01.12.2012, p. 831-842.

Research output: Contribution to journalArticle

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AU - Bailey, Chris D.

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