Credibility and the ‘professionalized’lay expert: Reflections on the dilemmas and opportunities of public involvement in health research

Jill Thompson, Paul Bissell, Cindy Cooper, Chris J. Armitage, Rosemary Barber

Research output: Contribution to journalArticle

40 Citations (Scopus)

Abstract

Contemporary health policy in England places increasing emphasis on patient and public involvement (PPI) in health and health research. With regard to the latter, it has been suggested that PPI brings ‘different’ perspectives to research decision-making spaces, based on what has been referred to as ‘experiential expertise’. This article presents findings from a qualitative study of PPI in cancer research settings in England. We argue that participants highlighted specific forms of expertise in their accounts about involvement, above and beyond experiential expertise, which they felt legitimated their claims to be credible participants within cancer research settings. We report here on the various strategies by which participants sought to accomplish this and highlight, in particular, a concomitant process of ‘professionalization’ of some within our group of participants. We discuss the significance of these findings in the context of recent debates around the status of experiential expertise.
Original languageEnglish
Pages (from-to)602-618
Number of pages17
JournalHealth
Volume16
Issue number6
DOIs
Publication statusPublished - 2012
Externally publishedYes

Fingerprint

credibility
expertise
expert
Health
health
Research
England
cancer
professionalization
Health Policy
health policy
Neoplasms
Decision Making
decision making
Group

Cite this

Thompson, Jill ; Bissell, Paul ; Cooper, Cindy ; Armitage, Chris J. ; Barber, Rosemary. / Credibility and the ‘professionalized’lay expert: Reflections on the dilemmas and opportunities of public involvement in health research. In: Health. 2012 ; Vol. 16, No. 6. pp. 602-618.
@article{835bb3c66c13432fa831cd8c394bd090,
title = "Credibility and the ‘professionalized’lay expert: Reflections on the dilemmas and opportunities of public involvement in health research",
abstract = "Contemporary health policy in England places increasing emphasis on patient and public involvement (PPI) in health and health research. With regard to the latter, it has been suggested that PPI brings ‘different’ perspectives to research decision-making spaces, based on what has been referred to as ‘experiential expertise’. This article presents findings from a qualitative study of PPI in cancer research settings in England. We argue that participants highlighted specific forms of expertise in their accounts about involvement, above and beyond experiential expertise, which they felt legitimated their claims to be credible participants within cancer research settings. We report here on the various strategies by which participants sought to accomplish this and highlight, in particular, a concomitant process of ‘professionalization’ of some within our group of participants. We discuss the significance of these findings in the context of recent debates around the status of experiential expertise.",
keywords = "Deliberative democracy, Experiential expertise, Policy, Professionalization, Public involvement (PPI)",
author = "Jill Thompson and Paul Bissell and Cindy Cooper and Armitage, {Chris J.} and Rosemary Barber",
year = "2012",
doi = "10.1177/1363459312441008",
language = "English",
volume = "16",
pages = "602--618",
journal = "Health (United Kingdom)",
issn = "1363-4593",
publisher = "Sage Publications Sage UK: London, England",
number = "6",

}

Credibility and the ‘professionalized’lay expert: Reflections on the dilemmas and opportunities of public involvement in health research. / Thompson, Jill; Bissell, Paul; Cooper, Cindy; Armitage, Chris J.; Barber, Rosemary.

In: Health, Vol. 16, No. 6, 2012, p. 602-618.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Credibility and the ‘professionalized’lay expert: Reflections on the dilemmas and opportunities of public involvement in health research

AU - Thompson, Jill

AU - Bissell, Paul

AU - Cooper, Cindy

AU - Armitage, Chris J.

AU - Barber, Rosemary

PY - 2012

Y1 - 2012

N2 - Contemporary health policy in England places increasing emphasis on patient and public involvement (PPI) in health and health research. With regard to the latter, it has been suggested that PPI brings ‘different’ perspectives to research decision-making spaces, based on what has been referred to as ‘experiential expertise’. This article presents findings from a qualitative study of PPI in cancer research settings in England. We argue that participants highlighted specific forms of expertise in their accounts about involvement, above and beyond experiential expertise, which they felt legitimated their claims to be credible participants within cancer research settings. We report here on the various strategies by which participants sought to accomplish this and highlight, in particular, a concomitant process of ‘professionalization’ of some within our group of participants. We discuss the significance of these findings in the context of recent debates around the status of experiential expertise.

AB - Contemporary health policy in England places increasing emphasis on patient and public involvement (PPI) in health and health research. With regard to the latter, it has been suggested that PPI brings ‘different’ perspectives to research decision-making spaces, based on what has been referred to as ‘experiential expertise’. This article presents findings from a qualitative study of PPI in cancer research settings in England. We argue that participants highlighted specific forms of expertise in their accounts about involvement, above and beyond experiential expertise, which they felt legitimated their claims to be credible participants within cancer research settings. We report here on the various strategies by which participants sought to accomplish this and highlight, in particular, a concomitant process of ‘professionalization’ of some within our group of participants. We discuss the significance of these findings in the context of recent debates around the status of experiential expertise.

KW - Deliberative democracy

KW - Experiential expertise

KW - Policy

KW - Professionalization

KW - Public involvement (PPI)

UR - http://journals.sagepub.com/home/hea

U2 - 10.1177/1363459312441008

DO - 10.1177/1363459312441008

M3 - Article

VL - 16

SP - 602

EP - 618

JO - Health (United Kingdom)

JF - Health (United Kingdom)

SN - 1363-4593

IS - 6

ER -