Empowerment and advocacy

Reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities

Qulsom Fazil, Louise M. Wallace, Gurnam Singh, Zoebia Ali, Paul Bywaters

Research output: Contribution to journalReview article

19 Citations (Scopus)

Abstract

The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.

Original languageEnglish
Pages (from-to)389-397
Number of pages9
JournalHealth and Social Care in the Community
Volume12
Issue number5
DOIs
Publication statusPublished - 1 Sep 2004
Externally publishedYes

Fingerprint

severe disability
Health Services Research
Disabled Children
action research
empowerment
information service
Information Services
service provider
community
Interpersonal Relations
quality of life
research project
Caregivers
Referral and Consultation
Quality of Life
Power (Psychology)
gender
resources

Cite this

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Empowerment and advocacy : Reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities. / Fazil, Qulsom; Wallace, Louise M.; Singh, Gurnam; Ali, Zoebia; Bywaters, Paul.

In: Health and Social Care in the Community, Vol. 12, No. 5, 01.09.2004, p. 389-397.

Research output: Contribution to journalReview article

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