Estimated prevalence of people with learning disabilities: template for qeneral practice

Victoria Allgar, Ghazala Mir, Joyce Evans, Joyce Marshall, David Cottrell, Phil Heywood, Eric Emerson

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004. Aim: To outline the development of a template to create practice-based registers of people with learning disabilities in general practice. Design of study: The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population. Setting: General practices in Leeds. Method: A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability. Results: The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4% of the practice population. Combined with validation from the city-wide database, this increased to 0.7%. Conclusion: The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices.

LanguageEnglish
Pages423-428
Number of pages6
JournalBritish Journal of General Practice
Volume58
Issue number551
DOIs
Publication statusPublished - 1 Jun 2008
Externally publishedYes

Fingerprint

Learning Disorders
Disabled Persons
General Practice
Contract Services
Databases
Electronic Health Records
Population
Health Services
Prospective Studies

Cite this

Allgar, Victoria ; Mir, Ghazala ; Evans, Joyce ; Marshall, Joyce ; Cottrell, David ; Heywood, Phil ; Emerson, Eric. / Estimated prevalence of people with learning disabilities : template for qeneral practice. In: British Journal of General Practice. 2008 ; Vol. 58, No. 551. pp. 423-428.
@article{fd43c7875c214473a8b56a900d90cd23,
title = "Estimated prevalence of people with learning disabilities: template for qeneral practice",
abstract = "Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004. Aim: To outline the development of a template to create practice-based registers of people with learning disabilities in general practice. Design of study: The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population. Setting: General practices in Leeds. Method: A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability. Results: The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4{\%} of the practice population. Combined with validation from the city-wide database, this increased to 0.7{\%}. Conclusion: The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices.",
keywords = "General practice, Learning disabilities, Prevalence, Register",
author = "Victoria Allgar and Ghazala Mir and Joyce Evans and Joyce Marshall and David Cottrell and Phil Heywood and Eric Emerson",
year = "2008",
month = "6",
day = "1",
doi = "10.3399/bjgp08X299272",
language = "English",
volume = "58",
pages = "423--428",
journal = "British Journal of General Practice",
issn = "0960-1643",
publisher = "Royal College of General Practitioners",
number = "551",

}

Estimated prevalence of people with learning disabilities : template for qeneral practice. / Allgar, Victoria; Mir, Ghazala; Evans, Joyce; Marshall, Joyce; Cottrell, David; Heywood, Phil; Emerson, Eric.

In: British Journal of General Practice, Vol. 58, No. 551, 01.06.2008, p. 423-428.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Estimated prevalence of people with learning disabilities

T2 - British Journal of General Practice

AU - Allgar, Victoria

AU - Mir, Ghazala

AU - Evans, Joyce

AU - Marshall, Joyce

AU - Cottrell, David

AU - Heywood, Phil

AU - Emerson, Eric

PY - 2008/6/1

Y1 - 2008/6/1

N2 - Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004. Aim: To outline the development of a template to create practice-based registers of people with learning disabilities in general practice. Design of study: The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population. Setting: General practices in Leeds. Method: A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability. Results: The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4% of the practice population. Combined with validation from the city-wide database, this increased to 0.7%. Conclusion: The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices.

AB - Background: In 2001, a white paper set out a commitment to ensure that people with a learning disability receive equal access to health services, with an expectation that general practices would have identified all people with a learning disability registered with the practice by June 2004. Aim: To outline the development of a template to create practice-based registers of people with learning disabilities in general practice. Design of study: The study was prospective, employing a template to identify patients in general practice with a learning disability. The study used capture-recapture methodology to estimate the prevalence of learning disability in the population. Setting: General practices in Leeds. Method: A template was developed that uses Read code searches of practices' electronic medical records, along with practice knowledge to identify patients who have a learning disability. Results: The tool was piloted in 30 general practices in Leeds and validated against a city-wide database of people with learning disability. There was a wide variation between the practices in terms of how many people were identified, with the average being 0.4% of the practice population. Combined with validation from the city-wide database, this increased to 0.7%. Conclusion: The template provides a valuable tool for general practices to begin developing a practice-based register of patients with a learning disability. This is particularly timely in view of the revised General Medical Services contract Quality and Outcomes Framework indicator, stimulating practices to produce a register of patients with learning disability. Use of a common definition for learning disability is needed to improve consistency in identification across practices.

KW - General practice

KW - Learning disabilities

KW - Prevalence

KW - Register

UR - http://www.scopus.com/inward/record.url?scp=44649193325&partnerID=8YFLogxK

U2 - 10.3399/bjgp08X299272

DO - 10.3399/bjgp08X299272

M3 - Article

VL - 58

SP - 423

EP - 428

JO - British Journal of General Practice

JF - British Journal of General Practice

SN - 0960-1643

IS - 551

ER -