Exploring patients’ opinions of activity pacing and a new activity pacing questionnaire for chronic pain and/or fatigue

A qualitative study

Deborah Antcliff, Philip Keeley, Malcolm Campbell, Steve Woby, Linda McGowan

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Objective Despite the frequent recommendation of activity pacing as a coping strategy for patients with chronic pain and/or fatigue, pacing is interpreted in different ways and there is an absence of a widely accepted pacing scale. We have developed a new Activity Pacing Questionnaire (APQ). The aims of this study were to explore patients’ views and beliefs about the concept of pacing, together with the acceptability of the APQ. Design Qualitative pragmatic study using semi-structured telephone interviews. Data were analysed using Framework analysis. Participants 16 adult patients attending secondary care physiotherapy out-patient departments were recruited via purposive sampling. Diagnoses included chronic low back pain, chronic widespread pain, fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis. Findings Pacing emerged as a multifaceted concept from participants’ descriptions. The implementation of pacing was influenced by participants’ age, the presence of co-morbidities and participants’ emotions. The APQ was found to be generally acceptable in comparison to two existing pacing subscales. Participants undertook activities using quota/symptom-contingent approaches. Four behavioural typologies emerged: Task avoidance, Task persistence, Task fluctuation (boom-bust) and Task modification (activity pacing). Conclusions The APQ appears to be easy to complete, and acceptable to patients who are attending physiotherapy for the management of long-term conditions. It emerged that individual patients implemented different pacing facets to varying degrees, and that different behavioural typologies were apparent. The relationships between behavioural typologies and facets of pacing warrant further investigation to facilitate the development of effective tailored pacing interventions.

Original languageEnglish
Pages (from-to)300-307
Number of pages8
JournalPhysiotherapy
Volume102
Issue number3
DOIs
Publication statusPublished - 1 Sep 2016

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Chronic Pain
Fatigue
Chronic Fatigue Syndrome
Secondary Care
Low Back Pain
Emotions
Outpatients
Surveys and Questionnaires
Interviews
Morbidity

Cite this

Antcliff, Deborah ; Keeley, Philip ; Campbell, Malcolm ; Woby, Steve ; McGowan, Linda. / Exploring patients’ opinions of activity pacing and a new activity pacing questionnaire for chronic pain and/or fatigue : A qualitative study. In: Physiotherapy. 2016 ; Vol. 102, No. 3. pp. 300-307.
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Exploring patients’ opinions of activity pacing and a new activity pacing questionnaire for chronic pain and/or fatigue : A qualitative study. / Antcliff, Deborah; Keeley, Philip; Campbell, Malcolm; Woby, Steve; McGowan, Linda.

In: Physiotherapy, Vol. 102, No. 3, 01.09.2016, p. 300-307.

Research output: Contribution to journalArticle

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