Abstract
An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants' practical contribution to enhancing research processes. By contrast, there has been less emphasis on the perspectives and experiences of those involved in PPI. Drawing on qualitative data with people involved in the National Cancer Research Network in the United Kingdom, we report on what motivated participants to get involved and their experiences of involvement in this setting. We highlight how those involved in PPI often espoused the notion of the "good citizen," with PPI in research being a natural extension of their wider civic interests. However, our findings also highlight how PPI was an important resource, utilized by participants to make sense of living with chronic illness. We suggest that PPI in research also offers spaces for the reconfiguration of self and identity.
| Original language | English |
|---|---|
| Pages (from-to) | 46-54 |
| Number of pages | 9 |
| Journal | Qualitative Health Research |
| Volume | 24 |
| Issue number | 1 |
| Early online date | 25 Nov 2013 |
| DOIs | |
| Publication status | Published - 1 Jan 2014 |
| Externally published | Yes |
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Exploring the impact of patient and public involvement in a cancer research setting. / Thompson, Jill; Bissell, Paul; Cooper, Cindy L.; Armitage, Chris J.; Barber, Rosemary.
In: Qualitative Health Research, Vol. 24, No. 1, 01.01.2014, p. 46-54.Research output: Contribution to journal › Article
TY - JOUR
T1 - Exploring the impact of patient and public involvement in a cancer research setting
AU - Thompson, Jill
AU - Bissell, Paul
AU - Cooper, Cindy L.
AU - Armitage, Chris J.
AU - Barber, Rosemary
PY - 2014/1/1
Y1 - 2014/1/1
N2 - An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants' practical contribution to enhancing research processes. By contrast, there has been less emphasis on the perspectives and experiences of those involved in PPI. Drawing on qualitative data with people involved in the National Cancer Research Network in the United Kingdom, we report on what motivated participants to get involved and their experiences of involvement in this setting. We highlight how those involved in PPI often espoused the notion of the "good citizen," with PPI in research being a natural extension of their wider civic interests. However, our findings also highlight how PPI was an important resource, utilized by participants to make sense of living with chronic illness. We suggest that PPI in research also offers spaces for the reconfiguration of self and identity.
AB - An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants' practical contribution to enhancing research processes. By contrast, there has been less emphasis on the perspectives and experiences of those involved in PPI. Drawing on qualitative data with people involved in the National Cancer Research Network in the United Kingdom, we report on what motivated participants to get involved and their experiences of involvement in this setting. We highlight how those involved in PPI often espoused the notion of the "good citizen," with PPI in research being a natural extension of their wider civic interests. However, our findings also highlight how PPI was an important resource, utilized by participants to make sense of living with chronic illness. We suggest that PPI in research also offers spaces for the reconfiguration of self and identity.
KW - illness and disease, experiences
KW - interviews
KW - lay concepts and practices
KW - research participation
UR - http://www.scopus.com/inward/record.url?scp=84893008524&partnerID=8YFLogxK
U2 - 10.1177/1049732313514482
DO - 10.1177/1049732313514482
M3 - Article
VL - 24
SP - 46
EP - 54
JO - Qualitative Health Research
JF - Qualitative Health Research
SN - 1049-7323
IS - 1
ER -