Living Well With a Long-Term Condition: Service-Users' Perspectives of a Self-Management Intervention

Nicola Stenberg, Penny Furness

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)


The outcomes of self-management interventions are commonly assessed using quantitative measurement tools, and few studies ask people with long-term conditions to explain, in their own words, what aspects of the intervention they valued. In this Grounded Theory study, a Health Trainers service in the north of England was evaluated based on interviews with eight service-users. Open, focused, and theoretical coding led to the development of a preliminary model explaining participants’ experiences and perceived impact of the service. The model reflects the findings that living well with a long-term condition encompassed social connectedness, changed identities, acceptance, and self-care. Health trainers performed four related roles that were perceived to contribute to these outcomes: conceptualizer, connector, coach, and champion. The evaluation contributes a grounded theoretical understanding of a personalized self-management intervention that emphasizes the benefits of a holistic approach to enable cognitive, behavioral, emotional, and social adjustments.
Original languageEnglish
Pages (from-to)547-558
Number of pages12
JournalQualitative Health Research
Issue number4
Early online date12 Feb 2016
Publication statusPublished - 1 Mar 2017
Externally publishedYes


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