Measuring quality of life in children with speech and language difficulties

a systematic review of existing approaches

Timothy Gomersall, Sarah Spencer, Hasan Basarir, Aki Tsuchiya, Judy Clegg, Anthea Sutton, Kath Dickinson

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

Background:Children's and adolescent's speech and language difficulties (SaLD) can affect various domains of quality of life (QoL), and speech and language therapy interventions are critical to improving QoL. Systematically measuring QoL outcomes in this population is highly complex due to factors such as heterogeneity in impairments and differing targets during intervention. However, measurements of QoL are increasingly required by healthcare commissioners and policy-makers to inform resource allocation.Aims:To review the use of QoL measures in research involving children (age ≤ 18 years) with SaLD.Methods & Procedures:A systematic review was undertaken. A systematic search across various databases was performed. Information on the methodological details of each relevant study, along with descriptions of the QoL measures employed, were extracted into standardized data extraction forms. Findings were discussed in a narrative synthesis.Outcomes & Results:Twenty-one relevant studies were identified that deal with a range of subpopulations of children with SaLD. For the most part, generic QoL measures were used, although there was little convergence on the type of QoL measures employed throughout the literature. Five studies utilized preference-based QoL measures, including the 16D/17D, HUI3, EQ-5D and QWB-SA. Of these measures, the HUI3 demonstrated the most promising discriminant validity, although the preference weights for this measure were generated with adults.Conclusions & Implications:QoL among children with SaLD is not yet being captured in a systematic way. The HUI3 measure appears to show some promise for generating relevant preference-based QoL estimates, although further testing of the measure is required.
Original languageEnglish
Pages (from-to)416-435
Number of pages20
JournalInternational Journal of Language and Communication Disorders
Volume50
Issue number4
Early online date29 Jan 2015
DOIs
Publication statusPublished - Jul 2015
Externally publishedYes

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quality of life
Language
Quality of Life
language
Systematic Review
Language Difficulties
Language Therapy
Speech Therapy
Resource Allocation
Administrative Personnel
Databases
adolescent
Delivery of Health Care
Weights and Measures
narrative
Research
resources
Population

Cite this

Gomersall, Timothy ; Spencer, Sarah ; Basarir, Hasan ; Tsuchiya, Aki ; Clegg, Judy ; Sutton, Anthea ; Dickinson, Kath. / Measuring quality of life in children with speech and language difficulties : a systematic review of existing approaches. In: International Journal of Language and Communication Disorders. 2015 ; Vol. 50, No. 4. pp. 416-435.
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Measuring quality of life in children with speech and language difficulties : a systematic review of existing approaches. / Gomersall, Timothy; Spencer, Sarah; Basarir, Hasan; Tsuchiya, Aki; Clegg, Judy; Sutton, Anthea; Dickinson, Kath.

In: International Journal of Language and Communication Disorders, Vol. 50, No. 4, 07.2015, p. 416-435.

Research output: Contribution to journalArticle

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T1 - Measuring quality of life in children with speech and language difficulties

T2 - a systematic review of existing approaches

AU - Gomersall, Timothy

AU - Spencer, Sarah

AU - Basarir, Hasan

AU - Tsuchiya, Aki

AU - Clegg, Judy

AU - Sutton, Anthea

AU - Dickinson, Kath

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N2 - Background:Children's and adolescent's speech and language difficulties (SaLD) can affect various domains of quality of life (QoL), and speech and language therapy interventions are critical to improving QoL. Systematically measuring QoL outcomes in this population is highly complex due to factors such as heterogeneity in impairments and differing targets during intervention. However, measurements of QoL are increasingly required by healthcare commissioners and policy-makers to inform resource allocation.Aims:To review the use of QoL measures in research involving children (age ≤ 18 years) with SaLD.Methods & Procedures:A systematic review was undertaken. A systematic search across various databases was performed. Information on the methodological details of each relevant study, along with descriptions of the QoL measures employed, were extracted into standardized data extraction forms. Findings were discussed in a narrative synthesis.Outcomes & Results:Twenty-one relevant studies were identified that deal with a range of subpopulations of children with SaLD. For the most part, generic QoL measures were used, although there was little convergence on the type of QoL measures employed throughout the literature. Five studies utilized preference-based QoL measures, including the 16D/17D, HUI3, EQ-5D and QWB-SA. Of these measures, the HUI3 demonstrated the most promising discriminant validity, although the preference weights for this measure were generated with adults.Conclusions & Implications:QoL among children with SaLD is not yet being captured in a systematic way. The HUI3 measure appears to show some promise for generating relevant preference-based QoL estimates, although further testing of the measure is required.

AB - Background:Children's and adolescent's speech and language difficulties (SaLD) can affect various domains of quality of life (QoL), and speech and language therapy interventions are critical to improving QoL. Systematically measuring QoL outcomes in this population is highly complex due to factors such as heterogeneity in impairments and differing targets during intervention. However, measurements of QoL are increasingly required by healthcare commissioners and policy-makers to inform resource allocation.Aims:To review the use of QoL measures in research involving children (age ≤ 18 years) with SaLD.Methods & Procedures:A systematic review was undertaken. A systematic search across various databases was performed. Information on the methodological details of each relevant study, along with descriptions of the QoL measures employed, were extracted into standardized data extraction forms. Findings were discussed in a narrative synthesis.Outcomes & Results:Twenty-one relevant studies were identified that deal with a range of subpopulations of children with SaLD. For the most part, generic QoL measures were used, although there was little convergence on the type of QoL measures employed throughout the literature. Five studies utilized preference-based QoL measures, including the 16D/17D, HUI3, EQ-5D and QWB-SA. Of these measures, the HUI3 demonstrated the most promising discriminant validity, although the preference weights for this measure were generated with adults.Conclusions & Implications:QoL among children with SaLD is not yet being captured in a systematic way. The HUI3 measure appears to show some promise for generating relevant preference-based QoL estimates, although further testing of the measure is required.

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