TY - JOUR
T1 - Patient and Public Involvement in the Coproduction of Knowledge
T2 - Reflection on the Analysis of Qualitative Data in a Mental Health Study
AU - Gillard, Steve
AU - Simons, Lucy
AU - Turner, Kati
AU - Lucock, Mike
AU - Edwards, Christine
PY - 2012
Y1 - 2012
N2 - Patient and public involvement in health research is increasingly well established internationally, but the impacts of involvement on the research process are hard to evaluate. We describe a process of qualitative data analysis in a mental health research project with a high level of mental health service user and carer involvement, and reflect critically on how we produced our findings. Team members not from research backgrounds sometimes challenged academic conventions, leading to complex findings that would otherwise have been missing. An essential component of how we coproduced knowledge involved retaining methodological flexibility so that nonconventional research voices in the team could situate and critique what was conventionally known. Deliberate and transparent reflection on how "who we are" informed the knowledge we produced was integral to our inquiry. We conclude that reflecting on knowledge (co)production is a useful tool for evaluating the impact of patient and public involvement on health research.
AB - Patient and public involvement in health research is increasingly well established internationally, but the impacts of involvement on the research process are hard to evaluate. We describe a process of qualitative data analysis in a mental health research project with a high level of mental health service user and carer involvement, and reflect critically on how we produced our findings. Team members not from research backgrounds sometimes challenged academic conventions, leading to complex findings that would otherwise have been missing. An essential component of how we coproduced knowledge involved retaining methodological flexibility so that nonconventional research voices in the team could situate and critique what was conventionally known. Deliberate and transparent reflection on how "who we are" informed the knowledge we produced was integral to our inquiry. We conclude that reflecting on knowledge (co)production is a useful tool for evaluating the impact of patient and public involvement on health research.
KW - Epistemology
KW - Health care, users' experiences
KW - Interpretive methods
KW - Knowledge construction
KW - Mental health and illness
KW - Qualitative analysis
KW - Reflexivity
KW - Research participation
KW - Self-care
UR - http://journals.sagepub.com/home/qhr
U2 - 10.1177/1049732312448541
DO - 10.1177/1049732312448541
M3 - Article
VL - 22
SP - 1126
EP - 1137
JO - Qualitative Health Research
JF - Qualitative Health Research
SN - 1049-7323
IS - 8
ER -