Secrets and Disclosure in Donor Conception

Lucy Frith, Eric Blyth, Marilyn Crawshaw, Olga van den Akker

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of ‘display’ to explore how secrecy affected their relationships with their immediate and extended family. Secrets are notoriously ‘leaky’ and we found complex patterns of knowing and uncertainty about whom in the family knew that the person was donor-conceived. We argue that what is kept secret and from whom provides insights into the multifaceted web of social relationships that can be created by donor-conception, and how knowledge can be managed and controlled in attempts to display and maintain family narratives of biogenetic connection.

Original languageEnglish
Pages (from-to)188-203
Number of pages16
JournalSociology of Health and Illness
Volume40
Issue number1
Early online date16 Nov 2017
DOIs
Publication statusPublished - Jan 2018

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Disclosure
secrecy
Confidentiality
narrative
extended family
Information Dissemination
Uncertainty
uncertainty
human being
Donor Conception
event
DNA

Cite this

Frith, L., Blyth, E., Crawshaw, M., & van den Akker, O. (2018). Secrets and Disclosure in Donor Conception. Sociology of Health and Illness, 40(1), 188-203. https://doi.org/10.1111/1467-9566.12633
Frith, Lucy ; Blyth, Eric ; Crawshaw, Marilyn ; van den Akker, Olga. / Secrets and Disclosure in Donor Conception. In: Sociology of Health and Illness. 2018 ; Vol. 40, No. 1. pp. 188-203.
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Frith, L, Blyth, E, Crawshaw, M & van den Akker, O 2018, 'Secrets and Disclosure in Donor Conception', Sociology of Health and Illness, vol. 40, no. 1, pp. 188-203. https://doi.org/10.1111/1467-9566.12633

Secrets and Disclosure in Donor Conception. / Frith, Lucy; Blyth, Eric; Crawshaw, Marilyn; van den Akker, Olga.

In: Sociology of Health and Illness, Vol. 40, No. 1, 01.2018, p. 188-203.

Research output: Contribution to journalArticle

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Frith L, Blyth E, Crawshaw M, van den Akker O. Secrets and Disclosure in Donor Conception. Sociology of Health and Illness. 2018 Jan;40(1):188-203. https://doi.org/10.1111/1467-9566.12633