Temporality, occupation, and relationships are identified as discrete factors that impact quality of life for individuals at the end of life and those around them. However, scholars, practitioners, and educators require insights regarding whether and how interactions between these factors shapes this quality of life. This study is framed by an understanding that meaning is negotiated between people through social interaction and occupational engagement in temporal contexts. We conducted in-depth interviews with 9 patients and 10 family members, incorporating the Pictor visual elicitation technique. Analysis was conducted through an iterative process involving open and selective coding. Findings are described as three main processes: 1) experiences of temporal rupture, 2) diminished significance of clock time, and 3) shifts in occupational priorities. Participants’ perspectives may help carers understand how to foster positive temporal experiences and quality of life for patients and those who love them.
|Journal||Qualitative Health Research|
|Publication status||Accepted/In press - 22 Apr 2020|
Bulk, L. Y., King, N., Kimel, G., & Nimmon, L. (Accepted/In press). Understanding experiences in hospice: Exploring temporal, occupational, and relational dimensions using pictor technique. Qualitative Health Research.