"We Could Do Better"

The Nature and Meaning of Information-Giving in End-stage COPD

Jackie Malone, Katherine Froggatt, Nancy Preston

Research output: Contribution to journalMeeting Abstract

Abstract

Background:End of life in Chronic Obstructive Pulmonary Disease (COPD) is typically difficult to predict, and although palliative care initiatives are developing, active treatment in the acute hospital setting often continues up to death. Staff delivering care but who may not be part of the treatment decision-making process express frustration at the lack of a palliative approach in end-stage disease and cite part of their role is to give information to assist decision-making for those in their care.Overall study aim:To understand the meaning and experiences of information-giving of staff caring for acute severe COPD within the social context of the acute hospital setting.Methods:In this exploratory, qualitative study, interviews and focus groups were undertaken with nurses and physiotherapists (n=10) who care for people with severe COPD in acute hospital settings in the North of England. A grounded theory approach to analysis was aided by the software NVivo.Results:Although staff can act as information-givers to support their patients, time constraints lead to hesitancy on their part, and they often wait for the patient to express concerns for their future before intervening. Once the conversation is initiated, staff express a sense of responsibility to do the job well, and this is often difficult. More experienced staff feel better equipped to give information and discuss decisions on behalf of their patients, but the success of this is rooted in inter-disciplinary relationships and the nature of the ward hierarchy. Conclusion:Inter-disciplinary relationships, professional experience and time constraints all create a challenge to effective information-giving in clinical practice when considering treatment decision-making for people with acute severe COPD.
Original languageEnglish
Article numberP345
Pages (from-to)NP239
Number of pages1
JournalPalliative Medicine
Volume30
Issue number6
Early online date11 May 2016
Publication statusPublished - 1 Jun 2016
Event9th World Congress of the European Association for Palliative Care - University College Dublin, Dublin, Ireland
Duration: 9 Jun 201611 Jun 2016
Conference number: 9
https://www.eapcnet.eu/events/previous-eapc-events

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Chronic Obstructive Pulmonary Disease
Decision Making
Frustration
Physical Therapists
Focus Groups
Palliative Care
England
Therapeutics
Software
Nurses
Interviews

Cite this

Malone, Jackie ; Froggatt, Katherine ; Preston, Nancy. / "We Could Do Better" : The Nature and Meaning of Information-Giving in End-stage COPD. In: Palliative Medicine. 2016 ; Vol. 30, No. 6. pp. NP239.
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abstract = "Background:End of life in Chronic Obstructive Pulmonary Disease (COPD) is typically difficult to predict, and although palliative care initiatives are developing, active treatment in the acute hospital setting often continues up to death. Staff delivering care but who may not be part of the treatment decision-making process express frustration at the lack of a palliative approach in end-stage disease and cite part of their role is to give information to assist decision-making for those in their care.Overall study aim:To understand the meaning and experiences of information-giving of staff caring for acute severe COPD within the social context of the acute hospital setting.Methods:In this exploratory, qualitative study, interviews and focus groups were undertaken with nurses and physiotherapists (n=10) who care for people with severe COPD in acute hospital settings in the North of England. A grounded theory approach to analysis was aided by the software NVivo.Results:Although staff can act as information-givers to support their patients, time constraints lead to hesitancy on their part, and they often wait for the patient to express concerns for their future before intervening. Once the conversation is initiated, staff express a sense of responsibility to do the job well, and this is often difficult. More experienced staff feel better equipped to give information and discuss decisions on behalf of their patients, but the success of this is rooted in inter-disciplinary relationships and the nature of the ward hierarchy. Conclusion:Inter-disciplinary relationships, professional experience and time constraints all create a challenge to effective information-giving in clinical practice when considering treatment decision-making for people with acute severe COPD.",
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"We Could Do Better" : The Nature and Meaning of Information-Giving in End-stage COPD. / Malone, Jackie; Froggatt, Katherine; Preston, Nancy.

In: Palliative Medicine, Vol. 30, No. 6, P345, 01.06.2016, p. NP239.

Research output: Contribution to journalMeeting Abstract

TY - JOUR

T1 - "We Could Do Better"

T2 - The Nature and Meaning of Information-Giving in End-stage COPD

AU - Malone, Jackie

AU - Froggatt, Katherine

AU - Preston, Nancy

PY - 2016/6/1

Y1 - 2016/6/1

N2 - Background:End of life in Chronic Obstructive Pulmonary Disease (COPD) is typically difficult to predict, and although palliative care initiatives are developing, active treatment in the acute hospital setting often continues up to death. Staff delivering care but who may not be part of the treatment decision-making process express frustration at the lack of a palliative approach in end-stage disease and cite part of their role is to give information to assist decision-making for those in their care.Overall study aim:To understand the meaning and experiences of information-giving of staff caring for acute severe COPD within the social context of the acute hospital setting.Methods:In this exploratory, qualitative study, interviews and focus groups were undertaken with nurses and physiotherapists (n=10) who care for people with severe COPD in acute hospital settings in the North of England. A grounded theory approach to analysis was aided by the software NVivo.Results:Although staff can act as information-givers to support their patients, time constraints lead to hesitancy on their part, and they often wait for the patient to express concerns for their future before intervening. Once the conversation is initiated, staff express a sense of responsibility to do the job well, and this is often difficult. More experienced staff feel better equipped to give information and discuss decisions on behalf of their patients, but the success of this is rooted in inter-disciplinary relationships and the nature of the ward hierarchy. Conclusion:Inter-disciplinary relationships, professional experience and time constraints all create a challenge to effective information-giving in clinical practice when considering treatment decision-making for people with acute severe COPD.

AB - Background:End of life in Chronic Obstructive Pulmonary Disease (COPD) is typically difficult to predict, and although palliative care initiatives are developing, active treatment in the acute hospital setting often continues up to death. Staff delivering care but who may not be part of the treatment decision-making process express frustration at the lack of a palliative approach in end-stage disease and cite part of their role is to give information to assist decision-making for those in their care.Overall study aim:To understand the meaning and experiences of information-giving of staff caring for acute severe COPD within the social context of the acute hospital setting.Methods:In this exploratory, qualitative study, interviews and focus groups were undertaken with nurses and physiotherapists (n=10) who care for people with severe COPD in acute hospital settings in the North of England. A grounded theory approach to analysis was aided by the software NVivo.Results:Although staff can act as information-givers to support their patients, time constraints lead to hesitancy on their part, and they often wait for the patient to express concerns for their future before intervening. Once the conversation is initiated, staff express a sense of responsibility to do the job well, and this is often difficult. More experienced staff feel better equipped to give information and discuss decisions on behalf of their patients, but the success of this is rooted in inter-disciplinary relationships and the nature of the ward hierarchy. Conclusion:Inter-disciplinary relationships, professional experience and time constraints all create a challenge to effective information-giving in clinical practice when considering treatment decision-making for people with acute severe COPD.

KW - Palliative Care

KW - End-stage COPD

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UR - https://www.eapcnet.eu/events/previous-eapc-events

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JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

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M1 - P345

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