@article{fb6fbec6c36e4efe9d9e9adf42705c01,
title = "“We don{\textquoteright}t want to go and be idle ducks”: family practices at the end of life",
abstract = "At present, end-of-life research, policy and practice typically prioritise the dying individual and consider the family an orbiting static unit. Sociological theorising of dying has reflected this trend, focusing on the macro-level and public rather than private sphere, with sociologists engaged in the study of family and relationships overlooking the end of life altogether. In addressing this gap, this article argues that the end of life is a relational experience in which everyday family practices are embedded and enacted. Drawing on two ethnographic studies, it demonstrates some of the ways in which family is actively {\textquoteleft}done{\textquoteright} at this time, principally in the transference of family practices into institutional settings, and shared decision making. In doing so, it makes a case for moving beyond a highly individualised emphasis on the person nearing the end of their life and an accompanying normative conceptualisation of family, towards an understanding that families (in all their diversity) and their continued (un)making are central to the experience.",
keywords = "Dying, End of life, Ethanography, Everyday, Family, Family practice, end of life, family practice, dying, family, ethnography, everyday",
author = "Erica Borgstrom and Julie Ellis and Kate Woodthorpe",
note = "Funding Information: The authors are listed in alphabetical order by surname and have contributed equally to the production of this article. They would like to thank the research participants and study sites involved in their respective research projects. The authors would like to thank Tony Walter and colleagues at the University of Sheffield for reading early drafts of the article, and the anonymous reviewers for the journal who all provided constructive and helpful feedback and suggestions. Borgstrom would like to thank her doctoral supervisors for their support and Ellis would like to thank Jenny Hockey for her supervisory support. Ellis? research was funded by an Economic and Social Research Council Studentship; grant reference PTA-030-2005-00154. Borgstrom?s research was funded through a National Institute of Health Research (NIHR) Collaborations for Leadership in Applied Health Research and Care (CLAHRC) for Cambridgeshire and Peterborough doctoral scholarship held at the University of Cambridge. Publisher Copyright: {\textcopyright} The Author(s) 2019. Copyright: Copyright 2019 Elsevier B.V., All rights reserved.",
year = "2019",
month = dec,
day = "1",
doi = "10.1177/0038038519841828",
language = "English",
volume = "53",
pages = "1127--1142",
journal = "Sociology",
issn = "0038-0385",
publisher = "SAGE Publications",
number = "6",
}